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Silent echoes

By Jaitrali Jhanjharya

As a psychotherapist, I've had the profound privilege of journeying alongside many individuals who navigate the complexities of life with multiple sclerosis. While the world may often perceive this condition through the lens of its physical manifestations – the mobility issues, the fatigue, the neurological symptoms – there is a less visible, yet equally profound, aspect of MS that often goes unnoticed. It is these unseen struggles, the cognitive challenges, and emotional changes, that I wish to bring into the light, for they too deserve our attention and compassion.

For those grappling with MS, the mind can become a battlefield as silent and perplexing as any physical symptom. Cognitive difficulties such as memory lapses, slowed processing, and difficulty with concentration can seep into the fabric of daily life, making ordinary tasks unexpectedly daunting. The vibrant individual who once juggled tasks with ease may now find themselves grappling to keep hold of the threads of their day-to-day life.

Imagine, if you will, the frustration that comes with knowing what you need to do – the clarity of intention – but being betrayed by your own mind's newfound opacity. This cognitive fog is disorienting; it chips away at one's confidence and sense of self. It's not simply forgetting a name or misplacing keys – it's the sense of standing at the edge of your own consciousness, feeling as though you're watching life through a veil.

Emotionally, MS can be just a turbulence journey. Emotional changes, such as mood swings, irritability, and periods of unexplained sadness or euphoria, can be disconcerting, not just for the individual, but for loved ones as well. The emotional rollercoaster is not just about the diagnosis itself – though that certainly plays a role – it's also a direct symptom of the neurological changes occurring within the brain.

The effect of these invisible symptoms cannot be overstated. They can strain relationships, erode self-esteem, and create a chasm between the person with MS and the world around them. As a therapist, my role is often to help bridge that chasm, to validate these unseen challenges and to work together with my clients to find ways to navigate this new and unpredictable landscape.

Coping mechanisms are as unique as the individuals I work with, but there are some strategies that can be universally helpful. Building a strong support system is crucial. This means finding people who understand that MS is not just about the visible symptoms. Support can come from family, friends, support groups, or mental health professionals who can provide a space to explore these challenges without judgment.

Mindfulness and meditation can also serve as powerful tools for managing cognitive and emotional symptoms. These practices can help individuals with MS to anchor themselves in the present, to find calm within the storm, and to observe their thoughts and feelings without being overwhelmed by them.

Structured routines can help combat cognitive fog, providing a scaffolding for daily tasks that might otherwise feel insurmountable. This might include using planners, setting reminders, or establishing habits that provide a sense of control and predictability.

Lastly, embracing creativity can be a therapeutic outlet, whether it's through art, music, writing, or any form of expression that feels meaningful. Creativity can transcend the barriers imposed by MS, allowing for a form of communication beyond words, a way to process emotions that might be too complex to articulate.

As a psychotherapist, I witness the courage it takes to confront the unseen aspects of MS every day. I see the strength it takes to reach out for support, to develop new coping strategies, and to adapt to the shifting sands of one's own cognition and emotions. To those facing these invisible battles, please know that your struggles are seen, your feelings are valid, and your experiences matter deeply.

In closing, I want to impart a message of hope: even in the shadowy corners of MS, where symptoms are unseen, understanding and support can shine a light. Together, we can navigate through the unseen struggles, finding ways to manage and cope, so that even on the toughest days, you know you are not alone.