Page 1 Page 2 Page 3 Page 4 Page 5 Page 6 Page 7 Page 8 Page 9 Page 10 Page 11 Page 12 Page 13 Page 14 Page 15 Page 16 Page 17 Page 18 Page 19 Page 20 Page 21 Page 22 Page 23 Page 24 Page 25 Page 26 Page 27 Page 28 Page 29 Page 30 Page 31 Page 32 Page 33 Page 34 Page 35 Page 36 Page 37 Page 38 Page 39 Page 40 Page 41 Page 42 Page 43 Page 44 Page 45 Page 46 Page 47 Page 48 Page 49 Page 50 Page 51 Page 52 Page 53 Page 54 Page 55 Page 56 Page 57 Page 58 Page 59 Page 60 Page 61 Page 62 Page 63 Page 64 Page 65 Page 669 MSFocus Summer 2016 I was devastated. I wasn't able to do the charity work that is such a part of me. This disease is a lonely place. But I refuse to let MS rule my life. I have found your website to be inspira- tional, and the stories told by positive people helped me when I was feeling alone and scared. I have learned that MS is really a deeply personal disease. When I call the support line I usually get to speak to someone with MS and the support I have been given has been priceless. I go to your website weekly just to recharge my resolve to fight this disease. I use the information I gain from your website to form my battle plan against MS. When new symptoms show up I just go on MSF’s website and research, then I go to my neurologist and show him what MSF suggested to help me. The research is there and I utilize it. I cannot ever thank MSF enough for the war they are waging against this disease. It has given me the resources for my own personal battle. Once I gain control of my MS, I will be actively help- ing MSF to gain the funds to give some- one else what they need to be “them”. Keep up the wonderful work you do and know that we with MS are living fuller lives because of MSF. Sincerely, Elaina Snelling Hello, I am writing about the wording in a caption in the story written by Diana Valeriano.The caption is on page 41. I don’t think Ms. Valeriano wrote the caption herself. The description of her “confined to a motorized wheelchair” brings to mind being incarcerated in constraints. She uses the chair, she is not confined. I am disappointed in this publication’s use of terms that have been discontinued in most circles involving people with disabilities. Thank you for your attention, Stephen Donnelly Editor’s note: Thank you, Mr. Donnelly, for bringing this oversight in editing to our attention. We apologize to Ms. Valeriano and to any of our readers who were troubled by the inclusion of that phrase. We know that the language we choose to use is important; it shapes the way our readers think about and relate to the information we publish. So, MSFocus strives to adhere to a strong set of communication standards to frame the way we talk about health, healthcare, and ability. In general terms, the goals of these standards are as follows: • To use language that focuses on the person, not on disability • To avoid language that reinforces negative stereotypes about disability or chronic illness • To use terms that emphasize the need for accessibility • To provide a balanced view of life with MS We heartily agree that a wheelchair is not a prison, but a tool for maintaining the freedom – as Ms. Valeriano proudly does in her role as MSF Ambassador. Letters are edited for length and clarity. If you have any comments or questions for the MSF, they can be emailed to: editor@msfocus.org or written to: Editor, MSFocus 6520 N. Andrews Ave., Ft. Lauderdale, FL 33309